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Welcome to the Les Brûlures Invisibles website, an association dedicated to supporting and informing people living with erythermalgia.
No one should face this disease alone. Our mission is to create a support network, share reliable information, and promote exchanges between patients and their loved ones.
Erythermalgia:
A rare and painful disease
Erythermalgia is a rare disease, often invisible to others, but it causes:
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Intense pain and burning sensations
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Excessive heat and visible redness
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Various areas affected: feet, hands, and more rarely the face (ears, cheeks, chin, nose)
These symptoms are disabling in daily life, but better information and appropriate support can improve patients' quality of life.
Why "Les Brûlures Invisibles"?
This association was born from the journey of Inès, a patient living with facial erythermalgia since 2019. Like many other patients, she noticed:
The lack of reliable information
The limited number of healthcare professionals trained in this disease
The deep isolation that erythermalgia can cause
Les Brûlures Invisibles aims to fill these gaps by supporting, informing, and connecting all those affected.
